It’s a mystery
Today was results day. My consultant was able to give me some very good news – my PET/CT scan shows that I remain in complete molecular remission from lymphoma. Hurrah!
Continue readingkicking the arse of the bastard beast ™ since 2014
Today was results day. My consultant was able to give me some very good news – my PET/CT scan shows that I remain in complete molecular remission from lymphoma. Hurrah!
Continue readingAn update. Weeks of low neutrophil and lymphocyte counts have led to a (permanent?) suspension of my rituximab maintenance sessions. After regular g-csf injections failed to shift the dial much,
Continue readingYesterday was the third anniversary of my stem cell transplant. This year’s card was more of a story book than a card … With the Covid-19 pandemic still raging and
Continue readingAfter a stop/start year for treatment I had my first maintenance dose of Rituximab since September on Friday morning. Strictly speaking I was below the neutrophil count required (1.3 vs
Continue readingSaturday marked the second anniversary of my stem cell transplant. With everything that’s happend since last year, it was a much more muted event. I did get a fantastic card
Continue readingThe world has changed dramatically since I last wrote here. The phrases “social distancing”, “self-isolation” and “shielding” are now common currency. I’ve been working from home since March 11th as
Continue readingThe last time I completed the Cancer Research UK walk 10,000 steps a day challenge was after I was diagnosed, but before I had chemotherapy and a stem cell transplant
Continue readingIt’s been five years since I was diagnosed with mantle cell lymphoma (MCL). I’ve always wanted to know what to expect from treatment. In 2014 the general consensus among haematologists
Continue readingHow am I? There’s a simple answer – worried, anxious and fatigued. But that’s far too simple an answer, as I’m also hopeful, grateful and optimistic. I feel as if
Continue readingOne year ago … … and today. First rebirthday and continuing to kick the arse of The Bastard Beast™.
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