Mantle Cell Lymphoma Diary – kicking the arse of the bastard beast ™ since 2014

MCL Diary

Piper Tomahawk flying over Tollerton Airport

Holding Pattern

Posted on 26 January 202226 January 2022 by Tim

National Geographic’s “Air Crash Investigation” is an endlessly fascinating watch for me, if sometimes rather grim. The step by step piecing together of the evidence is what holds my attention.

Badge declaring that I believe in the Loch Ness monster

It’s a mystery

Posted on 1 December 20211 December 2021 by Tim

Today was results day. My consultant was able to give me some very good news – my PET/CT scan shows that I remain in complete molecular remission from lymphoma. Hurrah!

Ouch

Posted on 7 November 2021 by Tim

An update. Weeks of low neutrophil and lymphocyte counts have led to a (permanent?) suspension of my rituximab maintenance sessions. After regular g-csf injections failed to shift the dial much,

Transplant +1,097: Third Birthday

Posted on 13 September 202127 October 2021 by Tim

Yesterday was the third anniversary of my stem cell transplant. This year’s card was more of a story book than a card … With the Covid-19 pandemic still raging and

Transplant +984: Grumbles

Posted on 23 May 202127 October 2021 by Tim

After a stop/start year for treatment I had my first maintenance dose of Rituximab since September on Friday morning. Strictly speaking I was below the neutrophil count required (1.3 vs

Transplant +733: 2nd Rebirthday

Posted on 14 September 202027 October 2021 by Tim

Saturday marked the second anniversary of my stem cell transplant. With everything that’s happend since last year, it was a much more muted event. I did get a fantastic card

Transplant +563: “Underlying medical condition”

Posted on 28 March 202027 October 2021 by Tim

The world has changed dramatically since I last wrote here. The phrases “social distancing”, “self-isolation” and “shielding” are now common currency. I’ve been working from home since March 11th as

Transplant +530: Walking all over cancer

Posted on 24 February 202027 October 2021 by Tim

The last time I completed the Cancer Research UK walk 10,000 steps a day challenge was after I was diagnosed, but before I had chemotherapy and a stem cell transplant

Beyond the median

Posted on 8 November 201927 October 2021 by Tim

It’s been five years since I was diagnosed with mantle cell lymphoma (MCL). I’ve always wanted to know what to expect from treatment. In 2014 the general consensus among haematologists

How am I?

Posted on 13 October 201927 October 2021 by Tim

How am I? There’s a simple answer – worried, anxious and fatigued. But that’s far too simple an answer, as I’m also hopeful, grateful and optimistic. I feel as if

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